Resources by Symptom

This is a compilation of various treatments that some people with Long COVID are pursuing. This is not medical advice. It is important that you work with a health care provider to determine what the best course of action is for your body and situation because some of these treatments may be ill advised for you.

Adrenal fatigue

Autonomic Nervous System

  • Supportive treatments
    • SSP (Safe and Sound Protocol): was created by PVT creator Stephen Porges to vibrationally stimulate the vagus nerve through specially engineered music. The acoustic vibration to the middle ear allows for the vagus nerve to support mind and body regulation.
    • Acupuncture
  • Websites and Articles
    • Stasis: is a fantastic organization. The founder works with Dr. Putrino, who is a PT and a Neuroscientist who has been in the lead at Mt Sinai in diagnosing Post Covid Dysautonomia and treating at their COVID Clinic. Stasis offers a free initial group to give an orientation to people with Long Term COVID needing support with breathing challenges. In addition, training of breathing patterns is used to influence Heart Rate Variability (HRV) and supports regulation of the vagus nerve and movement into a parasympathetic nervous system state. They are well informed from a nervous system perspective, and if you want individual coaching, they do charge, but a reasonable price, to get more individualized care planning.
  • Apps (HRV is an indicator of vagal tone. Breathing pracitce, meditation and yoga help improve vagal tone which supports the ANS)
    • Elite HRV: Biofeedback for HRV which is an indicator of vagal tone. The vagus nerve is largely responsible for the Autonomic Nervous System and therefore our adrenals.
    • Waking Up: A great meditation app. Is free for those who cannot afford it and has an intro program to teach us how to meditate.
    • Down Dog: A yoga app that allows you to customize it quite a bit to fit specific needs and includes a few gentle options for those of us that need gentle movement.

Brain fog

Persistent Cough

Dysautonomia

Heart palpitations

Hormone disregulation

  • Possible supplements and medications to talk to your health care provider about (tests should be taken to determine the course of action)
    • A-drenal
    • Desiccated adrenal
    • Cortisol manager
    • Low dose hydrocortisone
    • DHEA supplementation
    • Progesterone (female specific)
    • p-5-p
    • Caste Tree Berry
    • ProEPA
    • PEA+
  • Supportive treatments
    • Accupuncture
    • Diet alterations to cut out adrenal stressors
    • DUTCH lab or ZRT lab hormone testing
    • Vagal toning
    • Meditation

Inflammation

  • Possible supplements and medications to talk to your health care provider about (tests should be taken to determine the course of action)
    • Vitamin C
    • CBD

Immune System Support

  • Possible supplements and medications to talk to your health care provider about (tests should be taken to determine the course of action)
    • Vitamin C
    • Vitamin D
    • NAC
    • Immustim Complex

LPR

  • Possible supplements and medications to talk to your health care provider about
    • DGL
    • Digestive Enzymes
    • HCL
    • Probiotics
    • Glutamine
    • Zinc carnosine
    • Slippery Elm lozenges
  • Supportive Treatments
    • Wedge pillow

Lymph nodes persistently swollen lymph nodes and lymph channels

  • Could be a sign of persistent viral or bacterial infection. Illness and stress can activate dormant viruses, parasites, bacteria, etc. in our bodies. You can ask your health care provider to test you to see if you have any activated viruses.
  • Lymph drainage
    • Warm Epsom salt baths
    • Manual lymph drainage massage
    • Vibration therapy

Lungs (burning or injured lungs)

  • Glutathione via nebulizer
  • See SOB section for more information for support with Shortness of Breath
  • Some of us with injured lungs have experienced extreme sensitivity to air quality until they heal. Creating a room with an air purifier and humidifier can be very helpful. Eating raw foods or cooking in an instant pot or crock pot, keeping windows closed, and fresh HEPA filters in your HVAC can all help minimize air irritants in your home.

Mental health (PTSD, Anxiety, Depression)

We cannot separate the mind and the body. The stimulation and re-setting of the vagus nerve can take place in various forms of psychotherapy.

  • Possible supplements and medications to talk to your health care provider about (tests should be taken to determine the course of action)
    • Deproloft
    • A-drenal
    • Cortisol Manager
    • Phytocalm
    • p-5-p
  • Supportive Treatments
    • EMDR (Eye Movement Desensitization and Reprocessing): Is designed for trauma reprocessing. Our nervous system does not know the difference between trauma from the virus and physical trauma, and it is all cumulative and reciprocally activated.
    • IFS (Internal Family Systems Therapy): Is an approach working with protective parts that are present within our mind and nervous system. Getting support with finding more of our adaptive Self perspective is a way to support a calm vagal tone in our nervous system.
    • Polyvagal Informed therapy: Uses the foundation of the Poly Vagal Theory (PVT) created by Stephen Porges. This helps people identify which nervous system state we are landing in, or getting stuck in (often between dorsal vagal freeze and sympathetic fight, flee or fawn) and helps exercise the ‘vagal break’ to more freely move between states and ultimately access more ventral vagal activation. Ventral vagal is the ‘social engagement system’ where we feel safe and comfortable in mind and body and are able to find security of attachment with animals or people and feel the state of parasympathetic calm (even bliss) in the body.
    • TRE (Tension and Trauma Releasing Exercises): Is a somatic, body approach used to bring about a neurogenic tremor in our body that releases deeply held tension patterns and trauma that our bodies hold. The vibrational tremor is an avenue to reset the vagal tone and move into ventral vagal calm.
    • SSP (Safe and Sound Protocol): was created by PVT creator Stephen Porges to vibrationally stimulate the vagus nerve through specially engineered music. The acoustic vibration to the middle ear allows for the vagus nerve to support mind and body regulation.

POTS (Postural Orthostatic Tachycardia)

  • Supportive treatments
    • Salt: It is advised that you talk to your Doctor about adding in salt to your diet since this does not have the same effect for everyone. But in general, those of us with Dysautonomia and POTS have hypovolemia, meaning low blood volume. Because of this we need to increase our consumption of water and salt to supplement the low level and address the pooling of blood in our lower extremities. Adding in electrolytes without excessive sugar is also encouraged as we add water. In combination with adding salt, electrolytes and water, the importance of compression garments can be crucial.
    • Compression tights: Compression is what supports the blood getting up to our brains. Some people use compression stockings, but many of us find that full tights, like leggings, are a better option since it includes our legs and midsection. Some sort of abdominal compression can be helpful especially after eating when blood heads to our stomachs, often causing increased dizziness and at times nausea. Finding the right compression for you can make a big difference and is a way to increase the circulation and reduce effects of tachycardia, brain fog, nerve pain, etc. Spanx is the brand supported by Dysautonomia International, but even off label compression tights can be as low as 20 dollars on Amazon. Best to remove them at night since the horizontal position allows more free flow to the blood.
    • Physical therapy: CHOPS exercises The Children’s Hospital of Philadelphia holds the gold standard as far as physically rehabbing the autonomic nervous system with these CHOP’s exercises. For us with Post Covid Dysautonomia we need to MODIFY to an extreme. We might need to start with things like breathing intentionally for a period of time instead of moving the body at all if it is too difficult. Or we might lift one leg at a time while lying in bed, and perhaps do bridge pose in bed as part of the “training”. The idea is working up to doing the floor exercises and some type of recumbent cardio work before doing any upright exercise. The heart starts learning that it is meant to get up to a rate of 160 when rowing, instead of when just getting out of bed.
  • Articles and websites

Shortness of breath (SOB)

  • Supportive treatments
    • A spirometer can be helpful in getting biofeedback for increasing lung capacity.
    • LPR (see that section for more information) is common in people with Long COVID and can greatly affect breathing.
    • Vocal Cord Dysfunction is another cause in COVID Long Haulers for SOB
  • Articles and websites
    • The Pulmonary Wellness Foundation is in NY and has a lot of online education, webinars from specialists and virtual support groups available. They have Post Covid Bootcamp and Rehab that can be accessed virtually. Noah Greenspan, PT, DPT offer free or reduced cost individual sessions with people who are struggling in their rehabilitation.
    • Stasis: is a fantastic organization. The founder works with Dr. Putrino, who is a PT and a Neuroscientist who has been in the lead at Mt Sinai in diagnosing Post Covid Dysautonomia and treating at their COVID Clinic. Stasis offers a free initial group to give an orientation to people with Long Term COVID needing support with breathing challenges. In addition, training of breathing patterns is used to influence Heart Rate Variability (HRV) and supports regulation of the vagus nerve and movement into a parasympathetic nervous system state. They are well informed from a nervous system perspective, and if you want individual coaching, they do charge, but a reasonable price, to get more individualized care planning. They help with retraining breathing for those of us with “air hunger”, gasping for air, or the learned short, shallow upper chest breathing that can stick around habitually for months after people are getting adequate oxygen.
    • https://tschmauck.medium.com/long-covid-shortness-of-breath-may-easily-treatable-44701c27304f

Sleep disturbance

  • Possible supplements and medications to talk to your health care provider about (tests should be taken to determine the course of action)
    • Cortisol Manager
    • Phytocalm
    • CBD
    • Gaia Sleep

Throat